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Tuesday, December 09, 2008

I received this in an e-mail today concerning cousin Steven's surgery for medulloblastoma.

For any that have not checked the Caring Bridge website or face book:

Journal Monday, December 8, 2008


Family and Friends,I will try to update you on the Days events. Amazingly everything went pretty much according to plan and on time. We started early checking in doing the admittance and all. Labs etc. etc. Began to wonder if we were going to get to talk to the surgeon prior to surgery. Policy only allows two people to go to pre-op with the patient. Since this is a children's hospital, typically that is Mom and Dad. Steven not your typical child patient had a wife. That makes 3. So the three of us went down to pre-op all silently trying to hold the emotions in check. Britney experiencing this for the first time. Peggy and I being overcome by the memory of the same journey 6 years earlier. Before passing through the last set of doors the patient has to take a toy off the shelf even the 23 year olds. We recall 6 years ago a Nerf football was selected. This time Britney picks a board game. Through the retractable frosted glass doors we go. Since there are 3 Peggy is directed to a side room to sit in a chair with the door open. First anesthesiologists.. Then finally the Surgeon. Dr. Boop comes to explain the procedure and the risks. Peggy appears at Steven's bedside saying Im sorry but Im his mother and I am not sitting in that room any longer. Dr. Boop graciously Fielding my questions on the precautions to avoid infection and meningitis. Shakes my hand and I am sure shed a tear as he left to get scrubbed. We say a short silent prayer as Britney gives Steven one last kiss before we have to let him go.. in God's hands.


unbelievable the courage of these two kids. The three of us embrace and pray one more time regaining composure before we return to the the 5th floor to wait.....for the 3 hour procedure. It was good to have Dan and Deb (Britney's parents) and Peggy's Dad and his wife Marj here in support. The hourly phone calls came. Everything was going according to plan. Around 4:30 Dr. Boop came up stairs and gave us good reports. Initial frozen section appears to confirm the original dx of relapsed medulloblastoma. Will know more when results come from pathology.


Steven is being medicated for pain. Things get a little rough at times as med's where off and they wait the required 3 hour interval before giving more Demerol. We learned last go round that Steven has a paradoxical response to morphine. For the most part he is resting. Steven has a large incision from near his right ear just past the top of his head. Tomorrow and MRI will be done to confirm the effectiveness of the surgery.


In the mean time Praise God and thank him for his protection and comfort. Pray for no infections or meningitis and minimal pain and maximum rest. Especially pray for Britney to get much needed rest and health. thanks for the unbelievable amount of prayer support and encouragement all of you have expressed. To be sure. God is Faithful to his word. We have had a undeniable sense of peace that can only come from His presence. Give Him Thanks and Praise & Blessings,

Lyle (Steven's Dad)

In Him, Sue

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